Domino Thoughts

Once again, our local Great Strides walk for Cystic Fibrosis is fast approaching.  My son, Andrew, was diagnosed with CF when he was 4 and has been an extremely healthy CF patient.  Last October, he was hospitalized for the first time to have mucus blockage cleared from his sinuses. His surgeon estimated his blockage was 85%, and he was amazed he wasn't complaining more about sinus pain. He spent a week in the hospital getting a "CF tune-up" and had a PICC line inserted in his arm so he could have IV drugs three times a day for a few weeks once he got home.  There was plenty of Xbox playing during that month!

This annual event is the major fund raising event for the CF Foundation and the funds raised are used to help fund research towards finding a cure for CF. This year we are especially positive due to recent results from a phase 2 trial of a  compound that targets the basic defect that causes CF.  This drug was developed in partnership between the CF Foundation and Vertex Pharmaceutical.  Due to the relatively small size of the CF population (about 30K in the US), funds from other sources are difficult to come by, so the CF Foundation has taken the lead and been very creative in finding ways to get research done to find a cure.

The CF Foundation is an organization that makes the most of every dollar donated, more than 90 cents of each dollar goes to research. I invite you to make a donation using the link on the right side of my home page, of if you're reading via a feed, go here.  Thanks for every donation!